Keep Connected

Connecting with other people who have a UCD can make a big difference

When you or a loved one gets diagnosed with a urea cycle disorder (UCD) it can be overwhelming. Questions come up right away like, what do I do next? What steps should I be taking? How is this going to change my life? Is there anyone I can talk to about UCDs?

Yes! There is a thriving community of people who have a UCD and those who care for them. Join us for a UCD community event to connect and hear about others' experiences. On social media, you can join the UCD in Common Facebook page and connect there.

Discover other support organizations that are here to help

There are many organizations within the urea cycle disorder (UCD) community that can provide support along your UCD journey.

UCD Advocacy Organizations

Rare Disease Advocacy Organizations

Research